A month before my diagnosis I said to my wife, “I’m certain that at some point I felt well, but I can’t remember when.”
Alarming changes told me that something was wrong. An increasing decline for over a year in my physical strength and endurance, an increasing slurring of speech, shortness of breath, and a general overall angst now had a known cause–ALS.
- Attempting to play horse shoes in May 2012 at a party celebrating a grandson’s high school graduation, I could not reach the stake at the other end.
- I was bench pressing 200 lbs — suddenly I could hardly lift the bar.
- While hiking with my family up an easy “old lady’s” incline, I had to stop repeatedly to catch my breath–previously my wife and I had hiked many difficult climbs in the Rocky Mountains.
- I developed a slurring of speech.
- During a long bicycle ride I labored to raise my head above the handle bars to see where I was going.
- Climbing into my boat or Ford F-150 became inceasingly difficult.
ALS has brought about major changes in my life.
Five years ago I was riding a bicycle 24 miles a day. Today I spend my waking hours in an electric wheelchair. Five years ago I was teaching high school history classes. Today no one understands my speech. Five years ago I was very self-reliant. Today I cannot bathe myself, clothe myself, open a door by myself, or turn pages in a book very well. I breathe, aided by a ventilator.
ALS is a terminal disease, but I do not fear death.
I am a Christian, so I do not fear death. When I die physically I will enter heaven, not because I deserve it or have earned it. Jesus Christ, through his death and resurrection, has, as my substitute, paid the penalty that hung over my head, and God the Father has accepted Christ’s death as total payment for my sinful arrogance, self-will, and disobedience.
Since my diagnosis, things I had previously given much attention to (e.g.football scores, the latest smart phones, the daily news and politics) now seem non essential. And things which I thought were “down the road awhile” are suddenly “here and now.”
In the New Testament (Colossians 1:22) is found an astounding declaration that I recite to myself at least once daily.
“Once you were alienated from God and were an enemy in your mind because of your evil behavior. But now he has reconciled you by Christ’s physical body through death to present you holy in his sight, without blemish and free from accusation.”
Name: Ken Wackes
Home: Crystal River, Florida, U.S.A.
- Onset of Symptoms: June 2012 — slurring speech, loss of muscle strength
- Initial diagnosis: January 4, 2014, North Florida Medical Center, Jacksonville
- Confirmation of diagnosis: March 10, 2014, Mayo Clinic, Jacksonville
- Current support: ALS Clinic, University of South Florida, Tampa
Married: Ruth (1960-present)
Adult Children: 3
- Christian missionary living with Ekari tribe in West Papua (New Guinea) – 1964-1969
- Associate minister, Coral Ridge Presbyterian Church, Fort Lauderdale, FL – 1973-2004
- Headmaster, Westminster Academy, Fort Lauderdale, FL – 1973-2004
- Executive Director, Christian Schools of Florida – 2005-2015
- Chief Executive Director, Christian Schools of Florida – 2015-present
Education: Fort Lauderdale High School, Nyack College, Manhattan School of Music, Jaffray School of Missions, Columbia Theological Seminary, Vanderbilt University